Strategies

planning

Planning For Your Healthcare Appointment

Prepare
Keep a seizure log

  • Ask your Clinic to Community Educator for a Seizure Log.
  • Fill it out every time you have a seizure. The more details you include, the better.
  • Bring it to any epilepsy related appointments. (Medical and community)
  • If you chose to share the Seizure Log with your health care team – give them a photocopy.

Track your medications

  • List all of your prescriptions for epilepsy, including their Names, Dosages, How often you take them, Side effects, Reasons for Stopping the Medication.
  • Track all your over-the-counter medications, vitamins, supplements, and herbal remedies.
  • These lists give your healthcare team the information they need to advise you on possible drug interactions.
  • Keep the list with your Seizure Log.
  • You can bring your original bottles to your health care appointments or take a cell phone picture of the labels on each bottle.

Get ready to ask questions

  • Create a list of questions you have for your healthcare provider. These will be about your seizures, medications, side effects, etc.
  • Pharmacists can also answer your questions about medications, side effects, and drug interactions.
  • Create a list of questions for your Clinic to Community Educator. These can be about your Driver’s License, school, work, mood, behaviour, discrimination, financial support, etc.

Learn about epilpesy

  • Your Clinic to Community Educator will give you information about epilepsy and seizures and provide you with strategies to cope with this diagnosis.
  • Your Clinic to Community Educator does not diagnosis or treat your seizures but they can help you to understand your rights in the healthcare system and in the community.
  • The more you know about epilepsy, the better you will be able to manage your seizures and maintain a healthy lifestyle.

TIP: At your request, your Clinic to Community Educator will go with you to your appointment to take notes, ask questions, and help you understand the information provided.

TIP: If you have trouble with your mood, coping, or feelings of hopelessness, talk to a member of your healthcare team.

Share Information With Your Healthcare Professional
  • Be HONEST when you describe how you feel.
  • Explain other medical conditions, including physical and mental health.
  • Tell your epilepsy care team if you are seeking help from other sources (naturopath, herbal remedies, biofeedback, chiropractic, etc)
  • Don’t be too embarrassed to share personal details or sensitive subjects. Your healthcare team is there to help.

TIP: If you don’t understand what the doctor said, ask them to repeat it or write it down for you.

Before You Leave:

Make sure you understand

  • If there are new instructions to follow.
  • If there are any changes in your medications or other treatments.
  • If any follow up is needed. Was the healthcare provider going to book an EEG, MRI or refer you to a specialist?

Write any new information about your seizures/epilepsy and changes to treatments in your Seizure Log.

  • Include why changes were made.
  • Confirm with the healthcare provider that your understanding of the information they gave you is correct.
  • Find out when to return for your next visit.
  • Ask for medication renewals.

TIP: Find a consistent place to write down follow up appointments: this can be on your Seizure Log, a calendar on your fridge or electronically on a calendar on your cell phone or computer.

 

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